I went out of town for a week with my sisters. These are some pictures that my mom took of Carly while I was gone. Isn't she CUTE!!!
Carly woke up with a fever again today. I called neuro and they said to take her to her pediatrician. I got her an appointment and we headed in. They couldn't find a reason for her fevers too. But her pediatrician started throwing around new ideas and new specialists to see. She wants Carly to see a Rheumatologist. She said something about periodic fever syndrome. She wants us to get back into genetics to see if fevers have anything to do with chromosome 15 duplication syndrome. Maybe something is wrong with her hypothalmus? Maybe she has a immunodeficiency disorder? I'm going crazy. I'm seriously going crazy! Oh wait, I think I've already gone crazy!!! So here I am, wondering what to do. Any ideas?
Boy do I know how you feel about watching them be tortured and not being able to take much more! I have felt that way SOOOO much its crazy! Your not alone!
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