Friday, December 28, 2007
Heading to the neurosurgeon
I had a fetal MRI done last Friday and we got the results on Wednesday. First let me just say that I never want to have an MRI done again. I thought the tube that they put you in was much larger than it really was. I get very claustrophobic...not good. I did very well though with the exception of an itch that I couldn't get to because of the teeny tiny space and just about freaked out but really, no big deal! And now for the results, not that much of this will make sense to anyone reading. She has ventriculomegaly which means the ventricles of her brain are enlarged. They have increased in size substantially over the last month which leads them to believe she has obstructive hydrocephalus near the aqueduct of Sylvius, a condition called Aqueductal Stenosis. All these fancy words basically mean there is an itty bitty blockage where the ventricles meet. At this time the ventriculomegaly is being classified as moderate to severe which is making our case more urgent to be seen and may possibly mean in-utero shunting. We see the neurosurgeon next friday to go over the MRI and ultrasound films and get his diagnosis. So far the information that we have are opinions from my perinatologist, radiologist and OB. I am actually hoping that these are pretty accurate guesses as this seems to be the best form of hydrocephalus. As far as delivering goes, she will be delivered cecarean and be evaluated immediately with a possible transfer to Phoenix Childrens. If they do in-utero shunting now she would then go into surgery to have a more permanant shunt placed. Other than her brain she is perfect. She is small, in the 8th percentile for size but seems to be completely healthy. Hopefully we will get a more solid idea of what we are looking foreward to next week. Our neurosurgeon was classmates with my OB and is the top pediatric neurosurgeon in Arizona with extra research in hydrocephalus and shunting, and for me something I thought was important is he is LDS. That's it until I have more information to give.
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