Happy Halloween

Happy Halloween!!!

by the way...Carly is SCARED of Halloween

Hospital again

Carly was back at PCH for a week.

I took her in for a high fever and spent 6 hours at the ER. She tested positive for Influenza B so they started her on tamaflu and sent us home. The next day was sunday and she didn't seem to be doing any better. Still had a high fever, throwing up, lethargic, and wouldn't eat or drink. Finally we decided that she needed to go back. I got her in the car and as soon as I started to back out Carly threw up again. I ran in the house to grab a towel and a change of clothes so I could change her at the hospital. We finally got down the road and she started throwing up again and blacking out. I called Thad and told him we were coming home and to call the ambulance. He met us at the driveway and grabbed Carly out of the car. I called my parents (who had just gotten to Idaho and asked if my mom could fly home to be with me). The ambulance came and took us to Del Webb. My sister met us at the hospital since Thad had to stay at home with the other two kids. They started running tests. They found she had pneumonia, kidney infection, ear infection and the flu. Transport was called so we could be transferred to PCH. Guess who was standing outside the ambulance doors when they opened? My mom!!! She got a flight from Idaho Falls, connected in Salt Lake and her friends happened to be on the same flight so they brought her right to the hospital. Carly was treated for severe dehydration, pneumonia, and the flu. She had a VCUG and found she has grade 2 kidney reflux...guess that's where all her bladder infections were coming from...so they started her on a daily antibiotic. The good thing is that there were no complications with her shunt. So after a week we were finally released. Good times at PCH!

Summer fun

Carly is mischevious. Yesterday I was cleaning the kitchen and Cayson was watching tv and playing with Carly. It seemed pretty quiet after a while so I asked Cayson, "What is Carly doing?" He answered, "I don't know, she isn't in here." SERIOUSLY!!! After momentary panic I realized that there was no way she could have gotten outside so I just needed to look a little. Carly's new thing is to close all doors, unfortunately she tends to be on the wrong side of the door after its closed. I found her in the bathroom (door closed of course) sitting by the trash can sucking on a tube of toothpaste. Yesterday she also emptied and shreaded a whole tub of wipies all while I was doing laundry. Today she tore up a book cover and unrolled a whole roll of toilet paper then proceeded to shread and eat it. This girl is a handfull!

She's starting to talk a lot more. I get yelled at a LOT! For such a sweet looking girl she can make "Mama" sound like a bad word. Her vocabulary now consists of Mama, Daddy, Thank You, Table, Doggy (often confused for Daddy) and What's that. Although I work with her on sign she still only knows more, all done and hat. She is also obsessed with giving kisses now. Very cute but also very wet. We tell her tongue is acceptable now but she better not use it again until she is 21. Wish us luck with that!

Swimming is fun

Shopping is fun

I think Carly likes shopping.

1 year, 365 days, 52 weeks...

1 year stats

18.3 lbs. (10th%)

28 inches long (75th%)

44cm head (78th%)

Its been quite a week. Carly got her 12 month shots on March 23rd and showed no reaction to any of the shots. But 8 days later she started a reaction to her MMR and Chicken Pox vaccines. All tuesday, wednesday and thursday of this week she had a fever ranging between 101-104. Needless to say we didn't go much of anywhere, I was up a bunch during the nights and I had a FUSSY little girl. Luckily her fever broke by friday morning and she was able to have her MRI and shunt reprogram.

Now to the nitty gritty. Friday Thad and I had her to the hospital at 7am for her MRI. I wasn't able to be with her when they put her out because of the radiation (radiation, pregnancy...not so good) so Thad stayed with her and I watched from the door while she was put under. I better get used to seeing that since it will be a yearly experience. But the test went good, the shunt reprogram went good and we got the results after. Everything with her hydrocephalus is under control and her brain function looks good so far. They did find that she has Chiari One Malformation which right now is non-symptomatic but could be symptomatic in the future. Symptoms could include gagging or major headaches which if she becomes symptomatic could result in surgery to remove the extra bone. We also have to be careful of head trauma, especially at the base of her skull because the extra bone decreases the cushion between her brain and the skull. Also the bone has a higher chance of herniating the cerebellum. We also found that she has Agenesis of the corpus callosum which is a break in the corpus callosum surrounding her brain. We were told that it is the most common defect in children with congenital hydrocephalus and isn't anything too concerning. The major symptoms we could see from this is seizures which we could see from just having hydrocephalus. But the fact of the matter is that we are starting to see the effects of the hydrocephalus and things are starting to appear. We are at the point that we could start seeing other things start to appear that are associated with her hydrocephalus. The Dr's obviously do not hold a crystal ball and even though her brain looks fully functioning, things can change. But we are hopeful that this will be the end of it and she will have full undamaged function of her brain. Because of these new findings she will have an MRI every year to monitor the Chiari. And to top it all off, miss Carlykins developed hives to the anesthesia and looks like a rose bush.

10 months

(she has just learned how to feed herself...and the dog!)

I can't believe my little peanut is 10 months old today. Time is going by so fast!